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Feeding Tube Awareness Week 2018: Day 5

Educate and Celebrate: Fired Up About NutritionFriday, February 9th
Make a plan to educate 5 friends, family members, or media sources about tube feeding. What obstacles have you or your child overcome? Celebrate the successes. Show your tubie love!

When Raya's older siblings were in elementary school, they did presentations for their classes about feeding tubes for FTAW. The experience was awesome and the kids were much more interested in listening than what we expected. This year, I felt like Raya was at an age and maturity level where she could probably handle giving a presentation for her class, so I asked her if she wanted to. She thought it sounded like a great idea, so we set it up. 
Watching her speak in front of her class today was magic. She stood up in front of her class and told her story, and taught her friends about the different types of feeding tubes and the supplies we use to feed her. When she finished, they asked her a dozen or so questions, and she answered the all. They were quiet and respectful, and she did a fantastic job with everything. I got a good little chuckle when one of the boys asked her if she's had her tube the whole school year because he's never noticed it. After she was done, we let the kids have a hands-on learning experience with some G tube dolls and teddy bears and extra supplies. They all really liked that, and Raya looked so happy.

I'm finding myself at a loss for words to explain how it feels to watch her reach this stage where SHE is the one telling her own story. She is finding her voice and owning what she has been through, and it is amazing to watch that transformation happen right in front of me. There is a wisdom and a maturity in her that is beyond her years. I have been reflecting back on the early days when the uncertainty of her future felt so overwhelming. Deep down, something inside me knew that she would be okay, but I could never really imagine what that would look like. It is amazing to watch that unfold in front of us! Her future is bright and I know she will do great things in this world. We ♡ our tubie!


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