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Feeding Tube Awareness Week 2018: Day 4

Support: Fired Up About NutritionThursday, February 8th
It can be a challenge when family members or friends do not understand why you or your child needs a feeding tube. However, many family members do a great job of supporting their loved one. Encourage your family to learn about tube feeding, lend their support, and share their story. It can be isolating and challenging to do this alone. Tell people about why their support matters. 

Today's FTAW topic is Support. I consider myself incredibly blessed to have a supportive family throughout this journey. Not just my parents and siblings, but also my incredible extended family. There have also been circumstances that could only be fully understood by the friends who are fighting similar battles, and many of those friends have become like another family to me.
The things parents find themselves doing in the process of raising medically complex children do not always make sense from the outside looking in. I know there have been times (and probably still are) when those closest to us have disagreed with decisions we've made in Raya's care, and have had their own ideas about what we should have done instead, and I know that must be very difficult. I know I also have not always been the easiest to deal with, especially at the times when things were the most difficult and I was extremely stressed. I am grateful for the people who have been patient with me, and even more grateful for those who have made the effort to understand rather than to judge. Support means the world to a family like mine.

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