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I've been waiting her whole life for this...



This girl is amazing. I can hardly believe the progress she has made in the last 2 months with eating!! I've been spending a LOT of time in the kitchen and grocery shopping to come up with things she can (and WILL) eat. I cook for her, and then she eats what I cook. {most of it} I can hardly believe how much she's eating lately and what she's eating!


This morning, we had our first appointment with her new GI doctor since our beloved GI that we've been seeing since Raya was a newborn has retired. Changing doctors is NOT my favorite thing, but we don't have a choice this time. Thankfully the new one came highly recommended and I think it will be a good fit. I was a little nervous about what her weight would be since so much has changed with her oral intake since our last appointment, but she actually gained a whole kilo between July and today. That is HUGE! In the past, she has not gained as well on food as she has on formula so it is a huge relief to see her maintain her growth in spite of having about a quarter of her calories be from food now. She also grew almost 2 cm. The doctor was very pleased with her growth and wants to keep everything the same and monitor over the next few weeks until our next appointment, and then at that point, we'll go over her food log with the dietitian and fine tune everything.

I had to pinch myself on the way out. I cannot put into words how happy I am with how well she's doing! While we were driving to school after the appointment, we made plans for dinner tonight. I told her I had an idea for how to make chicken nuggets that she could eat. She's never had chicken nuggets and thought that sounded exciting. I went to a couple different grocery stores yesterday to find some things she's been eating lately and got some quinoa pasta in a different shape than she's had before, so I told her I could make her non-dairy/GF mac and cheese to go with her chicken nuggets. I found recipes I could tweak to accommodate what she's able to have, and I was pretty pleased with how it all turned out! (recipes forthcoming...)

She was so happy! She ate 2 of the chicken nuggets and almost all of the mac and cheese! I asked her if she liked the mac and cheese and she said, "Yeah. It kind of tastes like noodles." So I had to explain that mac and cheese IS noodles with cheese sauce. Sometimes I forget that she doesn't know some of those things. I just love her so much!! After so many years of struggling just to keep her digestive tract functioning, it feels incredible to be actually working on transitioning to oral intake and less tube intake. It is so fulfilling for me as her mom to come up with foods that her body can tolerate and she actually likes!

Tonight after bedtime, she came back downstairs and asked me if she could have 5 minutes of snuggle time. (yay for verbally expressing her feelings and asking for something!) We snuggled and I asked her what her favorite part of her day was. She said dinner.

I've been waiting her whole life for that.






Comments

  1. Way to go, Raya!! The first time each of my sons (oldest had feeding issues, but no tube, youngest had a G tube) said they were hungry, I cried :)

    ReplyDelete
  2. Wooohooo!! Way to go Raya, and WAY TO GO MAMA! :)

    ReplyDelete

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