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Um, excuse me, you're on my tube...

Raya cracks me up. Even more so when she's not trying to be funny. This afternoon, she asked if she could feed her baby sister a little bit of her bottle. She got all settled in on the couch, I put the baby on her lap, and handed her the bottle. She said, ”Um, Mommy, she's sitting on my tube.” I moved the tube out from under the baby. Raya gave a sigh of relief, smiled, and said, ” Ahhhhh, that's better. NOW I can feed her a little.” I wish I could remember every little funny thing the kids say and do. That's the stuff that makes it easier to swallow the less pleasant things. Like vomit. I had to run a quick errand this afternoon. When I got back, Donny and three baby were taking a little nap on the couch and Raya was playing on the floor next to the couch. Donny mumbled something about Raya saying she had puke in her mouth (which she says often). Raya corrected him and said she had puked but that she cleaned it up. I didn't really believe her until I got close enough to her that I could smell that formula + stomach smell that is forever burned into my memory thanks to her first year and a half of life. She had a little bit of formula puke on her shirt so we went in her room to change her clothes. After I had changed her pull-up, she said she thought she was going to puke again so I rushed her to the bathroom and opened the toilet lid just in the nick of time. That time she threw up a lot but bless her little heart, she got it all in the toilet. She's such a sweetheart and puking didn't even faze her. After she puked I asked her if her stomach felt better and she said it was still full so I plugged in a catheter bag to drain it. Even after vomiting twice, she drained 160+ ml of formula out of her stomach within a minute or two. That meant that her entire 2 hour feed that had just barely finished running was not leaving her stomach like it should have been. Every time Raya throws up I feel torn between hoping that her stomach is just having a bad motility day because that means it's not contagious and feeling bad for wishing dysmotility on her for the sake of the rest of us. The jury is still out add to whether she has a stomach bug or is just having a bad stomach day but it's not the first day this week that she's shown signs of decreased motility. Of course viruses can cause a decrease in motility so it COULD be a virus. (Do we see why this is so difficult?) I emailed her teacher and asked if anybody in her class has been out with stomach bugs this week but she said nobody has. Now we just give her pedialyte for the night and wait to see how she is tomorrow. She doesn't have a fever and has still been eating and drinking water today so that's a good sign. Speaking of good signs, it turns out that babies actually CAN grow on breastmilk alone. So far, she's about a pound more than her birth weight after 3 weeks and in spite of spitting up and choking on her bottle every time she eats. She has a well check next Thursday so the ped and I will be discussing that for sure. Hopefully he will have some ideas for us.


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Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …