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Staying cool

It's hot. We don't do much outside when it's hot but thankfully, we have access to swimming pools & splash pads close by and everything is air conditioned. We were going to go swimming on Tuesday morning but ended up needing to stay home and get some other things done. Raya had a therapy appointment that afternoon, which was probably the highlight of her day. She loves therapy!

Wednesday afternoon, the kids talked me into taking them swimming. I almost didn't because it was so hot outside. It was about 109 degrees when we left to go swimming, and that's about where I draw the line. It seems like an oxymoron to say that it's too hot to go swimming but it's easy to stay too long and get dehydrated when it's so hot and the water feels so good. Not to mention that we are all very pale people and I don't want anybody spending too much time in the sun. We only stayed for about half an hour but the kids had a great time.

Kaida refused to have her picture taken but the big kids were happy to oblige. :)

The best part about taking them swimming is that they wear themselves out and then they'll actually spend some time resting afterward. Later that afternoon, Raya helped me get a couple of Tubie Friends ready to mail.
She really liked the yellow bear with the G tube and NG tube. :)

This morning, we went to see another summer movie at the theater. Last year, taking Raya to the movies was a little tough because she could only sit for so long before she needed to get up and run around. She had a harder time sensory-wise at the movies last year too. This year, she's LOVING going to the "movie feeders"! It's been so fun because she relaxes in the dark theater and wants to snuggle with me.

After the movie, I took the kids to a splash pad for a while. I'm not a huge fan of the splash pad because it's really hot outside and I didn't get to play in the water. :) Raya LOVES it though.

Cole was being a water hog but the little kids at the splash pad didn't really seem to mind much.

The girls didn't want me to know they were getting tired because they didn't want to leave but they made it kind of obvious when they started laying down on the fountains.

Raya has been doing much better this week with sleeping in her bed all night. It's been pretty awesome. Tonight, I didn't get her in her bed before she fell asleep so we'll see how things go when I give her the night meds and put her in bed.


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Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

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That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

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Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
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