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Showing posts from April, 2013

Why I hate normal test results

There are all sorts of articles floating around that attempt to lump the sentiments of all special needs parents together on certain topics. I'm not going to pretend to speak for all parents of children with special needs, but I need to explain something. When it comes to medical testing, "normal" is not usually what I want to hear. Over the last 3 years, I've had a similar conversation play out more times than I can count. A friend or family member will hear that we're about to have a test done and will wish us luck and say they're hoping everything comes back normal. Or they'll ask me how the latest test went and when I tell them that the results came back normal, they'll congratulate me. I can't exactly blame them because admittedly, "normal" sounds like a positive thing. Sometimes it's a VERY good thing. We've ruled out some scary things in the past. Normal is not always positive though, and here's why.

A child who vomits …


Normally I don't care that much when it's Friday. Don't get me wrong, Fridays are lovely, but it's usually not that big of a deal. Today though, I'm SO glad it's Friday. Donny didn't have to work until 4pm so he didn't leave at 5:30 in the morning like he usually does and was here to help get the kids off to school. I didn't have to take Raya to school, and Donny took her to therapy so that I could go take my midterm, which I totally smoked. (go me!) Now it's quiet and the kids are at least pretending to be in bed, so I can relax and attempt to catch up on some projects & house cleaning that have gone by the wayside this week while I was studying.

Raya has had a better week this week than she did last week. Wednesday morning, I walked into the kitchen and she looked up at me with puffy chipmunk cheeks and a guilty look on her face. I asked her what was in her mouth and she just looked at me. I squeezed her cheeks so I could see into her mouth…

busy busy busy

It's been a busy weekend and the rest of the week will be too. Mommy has midterms and little girls have to meet their daily mischief quotas. Nothing too exciting on Raya's schedule this week but hopefully we'll hear back from the hospital soon about scheduling our little sleepover. She seems to be feeling good again, thank goodness. Hopefully it will last longer than 3 days this time.

In like a lion, out like a lamb...then back to being a lion

The title of this post doesn't refer to the month of March, it refers to the day we've had. :)
Things started out just peachy. Ashtyn, being the amazing big sister that she is, decided to get Raya ready for school all by herself. She changed her diaper, got her dressed, brushed her hair & put it in a ponytail, and then she & Cole decided to get her feeding pump ready too. It was adorable, even if they haven't quite gotten the hang of filling the pump bag & getting the cap on tight. Raya was in a great mood and we were all set to get to school on time for the first time this week. 

Then I asked her what she wanted to take to school for a snack. She picked out a grape Splash, and I poured about 2 ounces into her new purple sippy cup. That's about all she will drink at a time, especially if she's getting a pump feed at the same time, and since the kids had overfilled her pump bag a little bit and I planned on putting the sippy cup in her pump backpack to kee…

Sleeping funny and staying busy

Trying to catch up on sleep is hard when you don't go to bed at night. Little missy has found that out the hard way. She was up much too late Sunday night (in spite of her medicine) and after she had finally gone to sleep and her pump had finished running for the night, I was able to get her back into her bed without waking her up. I don't know what time, but sometime between 1 and 5 am, she climbed into bed with us. What was even more shocking was the fact that she slept until 8:20. I sent the big kids to school on the bus and let her sleep until she woke up on her own. It was a beautiful thing.
She didn't want to go to school but I didn't want her to think that she can just tell me she wants to stay home and then get to stay home, so I made her go anyway. She was an hour and 15 minutes late to school (which is only 2 1/2 hours long anyway) but she was happy to be there.

Last night was another off night for her and she fell asleep on the couch again. I don't know ho…


Raya has had a really, really off week, and today was no different. She cried for about 40 minutes this morning and the whole time she was crying, she repeated over and over, "I want a purple Tum!" (referring to Tums, because her throat is bothering her) Then after she got over that, she cried for another 20 or 30 minutes because she wanted to play with squirt guns. Then after that was over with and everybody else had gone to church, she started crying because she asked if she could watch Lion King 2 and I told her she couldn't. (um, that's a creepy movie. A little dark for Disney.) We were waiting for her poor, sweet respite provider whose car blew a tire on her way to our house, so when she got here, I peeled a whining, crying Raya off my leg and left. Apparently the crying went on for a good 20 minutes after I left. Then this afternoon, she cried because she wanted Smarties and I said she had to wait until dinner. At dinner, she wanted pudding so I made her som…

My formal apology to Target and a 101st birthday

This morning, the girls and I were at the store picking out a birthday present for their cousin. Raya was in the big part of the cart and Kaida was walking. We went in and I parked the cart next to a rack of clothes while Kaida picked out what she wanted to get for her cousin. Once she had decided, we started walking towards another part of the store looking for some other things we needed. When I started walking, I took a step and felt my shoe slide a little bit. I looked down and saw that I had stepped in a small puddle of water. It seemed a little odd but I kept going. Then I stepped in another wet spot. I looked behind me and I could see the light shining off of a whole trail of water spots. I thought to myself, "Hmmm...looks like someone had something leaky in their cart." Just then, a Target employee was walking by so I mentioned to him that it looked like something had spilled on the floor, and we went on our way.

We found a giant bag of Dum-Dums, which Raya was exci…