Skip to main content

Big girl bed

Raya has been sleeping in a crib since she stopped sleeping in the baby swing, which was at about 6 months. Ha ha. (Not joking, by the way.) Her crib came with a kit to convert it to a toddler bed but we never did it. We realized that even after she had learned how to climb out of the crib, as long as she was connected to the feeding pump, she would stay in. It was fabulous. While it lasted. All good things must come to an end though and the power of the crib rail plus freeing pump has run out.

Since she climbs in and out at will, I decided on Thursday that it was time to make the switch. Before: After: She was very excited and has been showing everybody her big girl bed. I wish I could say that she's been sleeping in it but so far it's only happened once and I'm feeling doubtful about tonight too. Bless her heart, she's adorable when she chatters about the deck of cards she's been sorting and re-sorting for the past 2.5 hours and asks me if she can PLEASE PLEASE PLEASE watch another episode of Monk on Netflix, or tiptoes into the doorway of our room and whispers loudly ” GOODNIGHT” 5 times in 5 minutes, but it's now 12:30am and it's time to get that little fanny in the big girl bed and keep it there! Did I mention we inadvertently missed giving her the ”nigh-night medicine” at the regular time tonight? Yeah. Now we remember why we decided it was a good idea. She did finally sleep in her bed last night, by the way. Her sleep has been so off ever since she's been sick. We're back to where we started with our current OT when we started working with her almost exactly a year ago. At that point, Raya needed some serious rest & relaxation so pretty much every session ended with Raya going to sleep for about 20 minutes. Her body is trying to kick all this crud she's had for the last few weeks but that's hard to do when you're not getting enough sleep so we've shifted gears at OT and we're working on helping her relax again. It seemed to work rather well on Friday: I love when she falls asleep in the swing like that. It makes me tempted to put one up in her room. :)


Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …