Skip to main content

Retiring an old companion

Exactly 2 years ago this week, we said goodbye to this big clunky backpack & pump:
And hello to a much more compact and baby-friendly one. With the new pump came a new backpack, and it was small enough for a 7 month old to wear it. Sort of. :)
6-13-10, 7 months old
That poor little backpack has been through a lot. It's traveled to 5 different states, held GALLONS of formula, been dragged around, run through the washing machine, and goodness knows how many times it's been vomited on and had formula spilled in it. Raya learned how to crawl wearing this backpack:

And she learned how to walk wearing this backpack:
Raya on her first birthday
 After 2 years of around-the-clock use and abuse, it has seen better days. Actually, it's downright trashed. The lining has long since torn out of the inside, one of the straps has almost completely come unstitched, the padding has long since flattened out in the straps, and there's a giant hole in the top from where the heavy formula bag has pulled on the hook & velcro and shredded the fabric at the seam.
It really has seen better days.

We've had a new one sitting in our storage bench for over a year but I decided that we'd wear out the old one completely before getting out the new one. In light of our vacation this week, I decided now was a good time to break out the shiny new backpack. I don't like it. There's no hook to hang the formula bag on and the belly strap is too short to put it under Raya's belly like we did with her old one so it hits her just barely below her G tube. It did come with a nifty little carabiner clip though and it has a little pocket on the front that the old one didn't have and honestly, I'm just grateful that changing insurance last year allowed us to order a new one from home health without a hassle. 
Thank you, faithful old backpack, for a job well-done. You have served your time and deserve to rest in peace.

One of my favorite pictures of Raya, July 2010
And we can only hope that this new backpack won't be necessary 2 years from now. :)


Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …