Nothing ever goes as planned with this child. My understanding of today's events was that we'd do an endoscopy, remove the old tube, take her to radiology while she was still asleep and put in the GJ tube. Didn't happen that way though. I knew we'd be there longer than expected when I mentioned the words "G tube change and GJ tube placement" to the nurse in pre-op and she looked at me and said, "Oh, that's not on the schedule." Fortunately, Raya was happy most of the time we were in pre-op:
|Her new little lamb that they gave her in pre-op|
|Last picture of Mr. Bard :)|
|Making silly faces|
|More silly faces|
|Looking for dust bunnies under the chairs|
|Yep, another gross picture of my kid's stomach wound. This is the catheter keeping the stoma open until the GJ tube placement.|
You get the point. That's pretty much how she was for the 2 hours between her endoscopy and when IR (Interventional Radiology) could get us in for the GJ placement.
Here's the bummer. The radiologist came out about 20 minutes after they started on her and told me that it was "anatomically impossible" to get the GJ tube in. The way I understand it, the location of her G tube made it so that there was no way they could get the guide catheter through her pyloric sphincter and into her small intestine. BUMMER! They put a new G tube in (not the kind I had planned on getting but oh well) and told us that the GI doctor will call us tomorrow and discuss what to do next. They pretty much said that if we still need to go ahead with the GJ tube, it will require another surgery to reposition the G tube. UGH. After I hooked up her feeding pump, we finally left. I'm glad that all of our appointments don't last 6.5 hours.
But to recap the good news, the old leaky tube that didn't fit is out and there's no tears in her esophagus or ulcers in her stomach and we are very grateful for both of those things. The end.