Skip to main content

8 months+3 weeks (Mon 8-2-10)

I'm a little slow getting Raya's 8 month pictures done but I wanted to do one last photo session with her before we say goodbye to the "tubey-tube" tomorrow. What can I say, I'm sentimental. Plus, it's been here almost as long as she has so I feel like it's part of the family now. :)

Raya at 8 months:
weight: 17 lbs 8 oz (34th percentile, which is AMAZING :)
length: 27-ish inches (forgot to write it down right away so I'm going from memory)
likes: Mommy, the stethoscope, syringes, the big kids, Daddy, swimming, baths, the battery-powered toothbrush, chewing on rubber tubing, unplugging the syringe from her NG tube when it's not in use, stretching out the NG tube with her toes, crawling away from her backpack (usually results in crying/screaming, face getting pulled funny from the NG tube, tube coming unplugged & snapping her like a rubber band, and sometimes tube coming out of nose), things that make a crinkling noise, eating paper (the only thing she LIKES to eat), getting her picture taken, hearing her own voice, playing with baby dolls (strange for her age, I know), playing with her reflection in the mirror, playing in spit-up (disgusting but true), her physical therapist & the toys at PT, her Rainforest crib toy, and biting wet washcloths
dislikes: food, having food put in her mouth, having spoons/syringes/medicine droppers put in her mouth, cold things in her mouth, having a pacifier in her mouth or sucking on a pacifier (or anything else), basically anything in her mouth unless she puts it there, having her NG tube put back in, having the tape on her cheek changed, needing her diaper changed, getting her diaper changed, getting her clothes changed, having to sit still, the taste of formula or anything else

Here's a few more pics from today:
This is what happens to her face when she gets too far away from the backpack. :)

(I know, I want to wipe the drool off her chin too. :)

I make her play with the doll that has a pacifier in its mouth. I'm hoping she'll learn from its example. :)

(The syringe is there to keep the NG tube from popping open & leaking while she's not hooked up to the feeding pump, just in case you were wondering. :)

Stay tuned for my Top 10 Things I Won't Miss About the NG tube. :)


Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …