Skip to main content


This. Is. Gross.

Um, yeah, when stuff that looks like that comes out of your kid's stomach, it's probably a good indicator that she has a problem. The picture makes it look more red than it actually was. It was more of a copper color. Either way, not normal. I dropped off her specimens at the doctor's office this morning & we shall see what they have to say about it.

**Afternoon Update**
So when the doctor saw the samples I took in this morning, she had her nurse call me back to tell me that it's definitely blood and that I needed to bring her back in 45 minutes for labs & a quick visit with the doctor. I hurried & called a friend to see if Kaida could come over & play so I didn't have to try to keep her out of trouble while Raya got blood drawn. My friend happened to be at Walmart waiting for her car to get its oil changed so I dropped Kaida off at Walmart. How WT is that. :)
Okay, anyway, the doctor said that Raya probably has a small perforation/tear somewhere in her lower esophagus that's probably a result of vomiting. It's really not surprising given how many times a day she's been vomiting for the last 5 months. She gave her a prescription for a medication that we'll have to give her on an "empty" stomach (since her stomach never really seems to empty) 4 times a day for a few days. It's supposed to adhere to any proteins that are present in her stomach & help heal the tear. If the bleeding continues or gets worse, she'll have another endoscopy to see where it's coming from and if it needs more intervention.
In light of the stomach blood, we've also decided that she for sure needs to have a GJ tube at least for a little while to give her poor little body a rest from all the vomiting. We're ALL ready for a break from it. Especially Mr. Washing Machine.


Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …