Today's theme is "Feeding Tube Fun". I think sometimes that's a bit of an oxymoron but we have sure had a lot of funny moments in the last 5 years with tube feeding.
One of my favorite stories was the time we went out to eat to celebrate one of the older kids' birthdays. We went through the usual, "No, we
don't need to order anything for her, she doesn't know how to eat yet."
conversation, and then Raya started to get impatient. She had been a
little testy this evening due to the runny nose that hit her today and
got a little upset that I wouldn't just hand my glass of water over to
her. In order to keep her happy until our food came and we could give
her a french fry to stuff in her mouth, I gave her a 60 ml syringe with a
little bit of water in it. She's pretty good at drinking out of it but
we had to work to keep her from accidentally unloading it all over
everybody around us.
She'd been playing with it for a few
minutes when she accidentally dropped it on the floor. Right then, a
lady who was walking by saw her drop something and was kind enough to
pick it up. As she reached out to hand it to me, it suddenly dawned on
her that she was holding a giant syringe that a baby had just been
sucking on. Her facial expression instantly changed from that of a happy
nice person picking up what the baby dropped to equal parts shock, fear
and disgust. Her face froze that way and she cocked her head to the
side and opened her mouth a little, as if she was going to say something
but nothing came out. She was completely dumbstruck. I smiled and
thanked her and she turned and scurried back to her table. As soon as
she was gone, Donny and I looked at each other and erupted into
uncontrollable laughter. I still laugh every time I think about it. I
wish I could have gotten a picture of her face and goodness knows what
the poor woman must have been thinking!
We've had so many funny things happen involving the feeding tube, and it's hard to remember what life was even like before tube feeding was part of our lives. We've had pump bags explode on us in public places, G tubes leak from one end of Target to another, more public vomit episodes than I can even count, and our kids think it's normal to say things like, "Raya, you need to be plugged in." and "Mommy, Raya is beeping again." It's a different life but it's a good one.
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