Raya's weekend was rough. She stirred in her sleep a lot. She was whiny, crabby, irritable, didn't listen to anyone that asked her to do anything, begged for ice cubes and animal crackers, and cried a lot. She also got mad at her respite provider (which has NEVER happened before) and tried to hit her when she tried to change her diaper. She and I spent half the night on the couch one night this weekend because she woke up crying and didn't seem to feel good. She's been screaming a lot, especially when we're in the car and/or when one of her siblings looks at her wrong. And then there's the gassiness... So we're doing this wheat-free trial. So far, the only thing she has wanted to eat has been the gluten-free animal crackers I got her at the grocery store on Friday. She loves them but they don't seem to love her. I don't know if she's just eating too many of them or if the rice ingredients in the crackers are bothering her. The trouble with gluten-free products is that rice seems to be the usual alternative. I'm thinking we may need to eliminate wheat AND rice to see if that helps with the symptoms. Heck, at this point I kind of want to take food away completely and see what happens. It just doesn't sit well with me that every time she starts to eat a significant quantity of any one thing, she ends up having allergic reactions to it. The sad thing is that since we've taken her off of gluten as of Saturday, she asks for bites of our food and then gets upset when we tell her she can't have it. Offering her ice cubes as a consolation prize doesn't really help in those cases.
On the bright side, so far it's working out great to have her sharing a room with her big brother. They are two peas in a pod. No matter what time they go to bed, their little internal alarm clocks RARELY ever let them sleep past 6:15 so they wake up and play until the other two are up. So far (in the 4 mornings we've woken up in this house) its going well. As much as they drive me crazy sometimes, it warms my heart to hear my kids playing together. Raya sometimes tells me out of the blue, "I like Bubba. He my fwend." :)
She had OT today but Kaida and I had a quick errand to run and didn't stay. We walked back to the therapy room with them so I could talk to her therapist for a minute but then we left. When we walked out, Raya was off in la-la land and her therapist was trying to get her to take her shirt off so they could put the SPIO vest on. When we got back, she said Raya got a little upset when I left but after a minute or two, she was fine. Our OTs went to a conference a couple weeks ago and learned some new things that they're really excited about incoporating into Raya's program and hopefully on Thursday we can talk about it more so I can understand it better. It has to do with reflexes that Raya still has that should have disappeared by now and it sounds very interesting.
Aside from Kaida's dentist appointment and having to go back to the old house to do some last-minute cleaning and yardwork, there's nothing on the schedule for tomorrow. I'm SO ready to be done with the old house so that I can get things put away in the new house so that Raya will stop making towers out of giant cans of food. Somebody could lose a toe! :)
|Raya wuz here...|