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Thursday, May 24, 2012

Mommy needs a padded room. Make it soundproof.

AAAAHHHH!!! This sweet, darling child:
has been an absolute WRECK today. She had a good OT session this morning. She tried another swing that she's never been on before. It's shaped like an upside down T so she sits on it and has to hug it with her arms & legs. It's a lot of work for her weak core muscles. After she'd had enough of that swing, she got in the baby swing and tolerated a surprising amount of motion. Her therapist did forward & backward, side to side, and spun her in a circle. That is a LOT of very strong sensory input, which is why I don't give her a bolus feed of formula before OT on Thursdays. :)
When she'd had enough swinging, she got to ride the scooterboard. She scooted back and forth across the floor about 10 times picking up one puzzle piece at a time and putting them on the puzzle board on the other side of the room. She tolerated the whole oral motor program today so that was an improvement over Tuesday too, but that's pretty much where the positives ended.
She fell asleep in the car on the way home and when we got home it was time to leave to pick the big kids up from their last day of school, so we switched cars and left again. She was crabby. To celebrate the end of a wonderful school year, we went out to lunch. She was still asleep until we sat down in the restaurant and then she just wanted to sit on my lap, which isn't really normal for her. She doesn't just sit. She was very quiet and still but perked up a little when the waitress brought her a high chair.
Big brother was sweet enough to share his fries with her. She likes fries but never swallows them. Normally we don't just let her cram her mouth full of food but today we were at a restaurant and she was extra cranky so most of the time she looked like this:
After she had chewed and pocketed about 4 or 5 french fries, Donny tried to get her to spit it out into a napkin and she had a fit. The more worked up she got, the more afraid I was that she was either going to puke or choke, so Donny and I traded seats and I got her to spit it out. She had a little sip of water and then started stuffing fries in her mouth again. And since the rest of us wanted to enjoy our lunch, we let her. A couple minutes later the whole thing repeated itself:
I helped her squeeze her cheeks to empty her mouth again. It was gross. Even more gross was that when the waitress came and took our dishes, she also picked up the napkins full of chewed up french fry goo while I wasn't looking. Bless her. I hope she washed her hands.
Oh, and speaking of gross and washing things, if there were any germs on the buckle of Raya's high chair (which I normally clean with sanitizing wipes but didn't have any in my purse today), she ingested them. I looked up at her just in time to see her rub the bitten end of her french fry on the buckle as if she was dipping it in sauce and then shove it in her mouth. Twice.
The rest of the afternoon/evening is a blur of screaming and crying. 4 hours' worth of it. I'm not exaggerating even a little bit. She cried off & on for the last 15 minutes of lunch and then really started crying when we left the restaurant because I wouldn't let her climb out of the high chair by herself. (meanest mom ever!) She cried and screamed all the way home and kept on crying and screaming for the next 4 hours. I'm not exaggerating in the least bit. It was unbelievable.
A couple of times I got her to stop for a few minutes but then she'd find something else to cry about. Finally the blessed hour of bedtime arrived and by then she was tired enough to get in bed without much protest. I love her dearly but walking out of the bedroom and leaving a quiet girl in her crib was the best moment of my evening. That was at 7:00 and she slept soundly until 8:45 when she started coughing and then crying again. I waited to see if she'd stop and after about 5 minutes she went back to sleep. Goodness knows what the rest of the night will be like. On the bright side, she hasn't had diarrhea today (probably because her GI had us stop all dairy products as of yesterday) but obviously she's not feeling good still.

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