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Sunday, May 20, 2012

Expanding our palate

This weekend's menu has included:
  • 6 tablespoons plain Greek yogurt (aka "sour cream" according to Raya)
  • approximately 65 goldfish crackers
  • 6 small bites of cocoa krispies
  • flour
  • raw pizza dough
  • 5 tablespoons fresh tomato sauce from the garden (with a little onion & basil pureed into it)
  • a few nibbles of pizza crust
  • 1 tablespoon peanut butter
  • some tastes of chicken enchilada
Not all of the above was swallowed but she's been trying more often to chew things. Someday she'll realize that it's easier to chew when her mouth isn't packed full. :) And obviously, a couple hundred calories over the course of a weekend isn't enough to sustain life but that's what the G tube is for. :)

She never ceases to amaze me these days. A lot of what comes out of her mouth is unintelligible but every now and then she'll pop out with something that surprises us and makes us want to be more careful about what we say in front of her on the off chance that she'll repeat it. Her stomach amazes me too. Last night I thought for sure I was going to be changing her sheets in the middle of the night. Before I went to bed, I realized that she needed more formula than she had gotten so I decided to bolus the rest with a syringe instead of with the pump. It was only about half of what her usual bolus feeds are but it went in faster than it does with the pump and for the next 45 minutes I laid awake in bed listening to her swallow, toss & turn, cough, and clear her throat just waiting for the vomiting to happen. Lucky for both of us it never did though. Maybe all that vomiting she used to do was like bodybuilding for her stomach and now it's so strong that she can't puke... Well, no, she proved me wrong a couple weeks ago when she soaked both of us with a full 8 oz of formula.

This afternoon I was laying on my bed and she climbed up next to me and started whispering nonsense in my ear. I was trying to listen to what she was saying but I didn't want goldfish cracker goo to drip in my ear so I made her stop and get down. :) Anyway, she's amazing. She's a little pill but she's so funny and so full of energy that you just can't help but love her and be exhausted by her presence all at the same time.

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