Over the weekend, Raya's OT drafted a magnificent letter explaining why we need to keep 2 hours of therapy and why it needs to be done in-clinic instead of at home. (Just to clarify, Raya's support coordinator is a wonderful lady and I have no problems with her at all, she just was in a position of needing to have documented justification for the services we were asking for.) The letter was perfect. I feel bad that she spent 4 hours of her weekend working on it but she did a fabulous job explaining things. For example, (and I'm paraphrasing) she explained that 2 of the body's primary regulators for the central nervous system (CNS) are sleep and nutrition. When those needs are not being adequately met on a consistent basis, the body is unable to respond appropriately to other needs. Raya has disruptions in both of those processes and the sensory protocols we have put into place for her have assisted in organizing her CNS which allows her to be more fully present in age-appropriate functional tasks in all areas of function and development. Not to mention the positive effect that OT has on helping her to tolerate her other therapies.
|Wild & crazy on the scooter board :)|
Our support coordinator came to Raya's OT appointment today and as soon as we got there and walked in, I knew we weren't going to have any problems getting the approval we needed for the second hour. The challenge came in giving her enough evidence that in-clinic therapy was absolutely necessary since the state wants all the early intervention therapies to be done at home now. We explained all the reasons we could think of and I think between the two of us, we had every possible thing covered. Including the part where the therapist listed off all the equipment that would need to be provided to us if we were forced to do home therapy. :) Again though, all we had to do was go through the things we normally do during her OT sessions in the little itty bitty, dark, quiet room with the cuddle swing hanging from the ceiling and it was pretty clear that there's no way I can duplicate that environment at my house.
|Nope, can't do this at home! (And Miss Elizabeth, can you believe she's actually IN that swing and SMILING!?!)|
When all was said and done, our support coordinator pulled out the paperwork and had me sign it and said the auth would be extended for another 3 months and not to worry about the in-clinic vs. home therapy issue. Like I said, for whatever reason I really hadn't been stressed about it being approved. We've had bigger fish to fry around here this week and I knew we had a really strong case for it so thankfully it went our way.
When I had pulled into the parking lot, the support coordinator pulled in right next to me and the first thing she said to me when she got out of her car was, "Wow, you drive a long way just to get to therapy!" I told her that we love it there and it's totally worth the drive. Then during the session I made the point to her that for the past 14 months, I've been driving 25 minutes each way for therapy and now we're doing it twice a week because we love it there and it's by choice (well, except for the part where they were the only ones with availability when we needed therapy but that's beside the point). As the therapist was walking us out, she said, "This is a great facility!" and then when we got to the parking lot she said, "I can totally understand now why you're willing to drive all this way to get to therapy. This is a great clinic. I wish I had brought some of my coworkers with me so they could have seen it."
Score one for Mommy & another fabulous OT. :)