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Monday, October 17, 2011

Surviving the weekend & bumps in the gov't road

Well, everyone survived Mommy's weekend away. Not that there were any doubts about that since SuperDaddy was on duty. :) When we got home, the kitchen was clean and everyone was happy. As far as I heard, there was only one minor incident of Raya taking apart her feeding tube when she was supposed to be taking a nap but she didn't break anything so no real harm done. Perhaps I should leave more often. :)
Speaking of leaving, we have hit an inevitable bump in the road to getting respite care. I really try not to complain about Raya's state-provided long term care insurance since it really is a huge blessing to us and we feel lucky that she was able to get it, but the fact of the matter is that it's still insurance and there are still road blocks and red tape involved. Evidently, because there were changes made to the allowances for respite care that went into effect on Oct. 1st of this year, everyone is now waiting for approval for their respite care services.
I'm a little unclear as to why we have to wait for approval for something that we've already been approved for. At the last meeting I had with our support coordinator, she told me that changes were coming and she approved us for the maximum allowable hours for the NEW regulations, which I thought she was doing to avoid this exact issue. Apparently that did nothing except let us know what the new regulations would be. I don't know how it would have affected us if we had started using the respite care before October 1st either. Well, whatever the reason, it's looking like we will not be starting with respite care this Sunday like we had thought. Bummer, but oh well. We've waited this long so what's another week or two (or 4), right? :)

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