Skip to main content

Visit with the Allergist

We LOVE the 2 allergists that our kids see. They are so good with the kids, they're great about explaining things to me and answering questions, they're very generous with samples, and they're just really great people. Now if we could just get in & out of their office in under 90 minutes, it would be perfect. :) They do have a sense of humor about it though. You can tell by their choice of cabinet-top decor:

Raya saw her allergist yesterday and other than having 2 very bored and restless little girls cooped up in a 9x9 room for an hour, it went well. I caught him up on her progress in the past 4-6 months since we saw him last. I told him we're in the process of weaning her off of the medication that interfered with her allergy testing in February and he said that we can keep trying new foods with her for a few months and see if any issues come up.
I told him about when she had a skin reaction to the pureed rice she smeared all over her face & arms and he was surprised. He said it's pretty rare for someone to be allergic to rice. Raya never was one to stick with stereotypes though. :) He said to definitely avoid feeding her rice and products where rice is a main ingredient. Hopefully she'll be able to tolerate at least a little because rice is in EVERYTHING since most people aren't allergic to it. That does explain some things though. When Raya was first having issues with projectile vomiting, things got worse when I started an elimination diet and cut out everything that is a common allergen. The only grain I WAS eating was rice. Then to make matters worse, the weekend before she was admitted the first time, her GI doctor had me add rice cereal to the breastmilk for added calories and Raya puked her little guts out non-stop all weekend.
We're also avoiding dairy still. A few months ago, she switched from Neocate, which is totally hypoallergenic and as broken-down as it gets to Peptamen Jr, which is a little less broken down and has whey in it. Within a week or 2 of switching, her unpleasant lower digestive side-effects had gotten a LOT better but she had developed eczema on her thighs. Since the amount of dairy in the formula is extremely low, we're afraid that giving her any more than that small amount would cause problems for her so we're staying away from it for now.
So from here, the plan is to keep avoiding rice & dairy and keep introducing new foods and watch for reactions. Then, the next time she's getting blood drawn or being scoped or having an IV for whatever reason, I'm supposed to call the allergist's office and let them know and they'll order some blood work for more specific foods and allergens. I don't anticipate that being anytime soon so for now, we'll just keep letting her eat whatever she will eat and see what happens.
Oh, and in other news, when we weighed her yesterday, she was just barely over 26 lbs. That means she's tained 1 pound in the last 2 weeks so I'm pretty excited about that. That means even though I keep screwing up her feeding schedule that I'm still trying to get used to, she's still growing. :)

Comments

Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …