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Thursday, August 18, 2011


Raya was a rock star yesterday and ate 223 calories! (give or take a couple :) It was definitely a day to be marked on the calendar. That's more oral calories than she's taken in since she was 5 months old and stopped eating completely. She ate 105 calories at breakfast (oatmeal+raisins+cinnamon) and 118 calories for dinner (cooked, pureed pinto beans+a little bit of salsa juice :). I've been measuring everything in exact amounts and then calculating how many calories per tablespoon. It's a lot easier to estimate how much she's actually eating.
We're excited but we also realize that just because she did it yesterday doesn't mean she's "cured" and it's going to happen every time. This morning, she was more interested in playing with the oatmeal again and probably only ate about 65 calories. Then she tried to shovel the rest of it directly into her feeding tube:
One of the biggest lessons that we've learned from this whole experience is to celebrate the small victories when they come and to not dwell on the steps backwards. Both will happen, and you just have to take them as they come. Now if you'll excuse me, I need to go dig pureed oatmeal out of the balloon port on her G tube before it dries and hardens like concrete. :)

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