We left the house at 10:30 this morning (we being me and the 4 kids) to take Raya to OT. Halfway through OT, the bile drainage bag decided to spring a huge leak so bile went everywhere. I couldn't figure out where it was coming from though. Once OT was over, I took the 3 big kids to their cousins' house to go swimming & play until Raya & I got back.
When we got to the hospital, Raya looked like this:
I waited until I only had 2 minutes before we were supposed to check in to get her out because I knew as soon as I opened the car door, naptime was over. It was about then that I realized I had forgotten to bring a stroller, so we were hoofing it. Wouldn't have been so bad except that the new admitting area is about as far as it possibly could be from pre-op/endoscopy. Then halfway through the parking garage, the stupid bile bag started leaking again so I had to unplug it and clamp the tube. We checked in and the real fun began. :) How do you entertain an 18 month old for 2 hours? (perhaps the real question should be why the heck they make you check in 2 hours early):
|Take pictures of yourselves so you can show them to her |
on the little screen on the camera.
|Pretend the hospital pager is a cell phone and then steal Mommy's phone out of her pocket so you can talk on both at the same time. Then run around admitting trying to steal other people's hospital pagers, car keys, etc.|
|Find a paperclip on the floor and try to poke it into the little holes on the pager.|
|Play Alvin & the Chipmunks and Mario on the DS, which is apparently not nearly as fun for an 18 month old as it is for a 6 year old.|
|Wear a barf bag on your head. Don't worry, it's never been puked in.|
|Plug syringes into your extension tube ports.|
Anyway, they finally got us in and prepped for the procedure and the doctor came in to talk for a few minutes and then I walked her in to the room and held her for a minute while the anesthesiologist got ready for her. The nurse untied the hospital gown so the knot wouldn't dig into her back and Raya took that as a cue to rip it off and throw it on the floor. :) Poor kid thinks anytime she's in a medical facility she's supposed to take her clothes off. :) I put her down on the bed & the nurse covered her up with a warm blanket and the anesthesiologist put the mask on her and that's when I left. It was a little creepy. They don't usually even have me come in the room so it was a little strange that they did this time, let alone have me stay in there until he was ready to knock her out.
So without further ado, everything looked normal. Go friggin' figure. I have now used the word "friggin'" twice in one post. That should be a clue as to how I feel about it. Friggin' friggin' friggin'. I shouldn't be surprised that there's nothing abnormal in there. There's NEVER anything abnormal and I'm getting SO sick of things looking normal when there's obviously a problem. Dr. S said that all her tissue looks healthy and there were no obstructions and there's plenty of space where her tube goes through the pylorus into the small intestine. She didn't see any inflammation either. She said that the only slightly abnormal thing she saw was that the ampulla (the duct where bile enters the duodenum portion of the small intestine) is closer to her stomach than normal. She said that usually the ampulla is farther away from the stomach than Raya's is and that the tube was resting against the side of the ampulla. That might be insignificant but it's the only thing out of the ordinary that she saw. So once again, I feel like we're beating our heads against the same old brick wall. It's obvious that something was going on in her little body but even going in with a scope didn't turn up anything. Dr. S did take biopsies though and she had them do labs while Raya was under so they can check her pancreatic enzymes and make sure that losing all of those fluids for the last 3 weeks hasn't thrown off her body chemistry (electrolytes, etc.). If all of that comes back normal too I might have to kick something. (But not with my right foot because Raya chucked a can of El Pato sauce at it when we were at the grocery store yesterday and the edge of the can landed right on the joint where my big toe hooks to my foot and it really REALLY hurts.)