|(never mind the package of toilet paper on the floor in the kitchen)|
which make it look like Raya is eating. And while it may appear that she is eating a cracker, there is nothing but biting happening. No swallowing going on except for a few crumbs that happen to make it down the hatch. The rest of what she "eats" ends up like this:
I don't remember how old I was when I finally realized that Cookie Monster wasn't actually eating the cookie, but today I realized that although Raya is making GREAT strides in her willingness to put food in her mouth (mostly crunchy things that she can bite), she's pretty much like a muppet. She is making NO effort to swallow the crumbs and still goes to pretty good lengths to get them out of her mouth. It is still progress though and we're happy as can be with her recent interest in biting food.
We are also very excited about this:
And as you can see, the main objective of her "lunch" was to make the biggest possible mess with 1 cracker and a cup or so of water.
I would say mission accomplished. :)
I had to schedule an appointment with the surgeon to check out Raya's GJ tube. Not too excited about that especially since the soonest we could get in is Tuesday and we already have 2 other appointments on Tuesday. Somehow Raya ended up with 6 appointments next week, which will break her previous record if we end up going to all of them.
I'm pretty sure it will go a little something like this:
Me: Raya's J port keeps leaking bile.
Surgeon: (looks at tube) It seems to be leaking bile. We need to change it. Call IR (interventional radiology) and make an appointment. Nice to see you again. Goodbye.
Me: Okay, thank you. Goodbye.
I'm SOOO tired of the gross yellow spots on the front of her shirt from the tube leaking and having to try and keep the bile off of her skin. I've been taping extra gauze around it but she loves ripping that off so it doesn't stay there very long. Hopefully soon we can say goodbye to the leaky tube!