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Monday, May 23, 2011
Feeling like a broken record
And the drainage just keeps on comin'. I remember being totally floored when Raya hit 275ml last fall. I was blown away that her stomach would produce THAT MUCH excess fluid. That, of course, was NOTHING compared to the last 7 days. In the last week, she has lost 360ml, 430ml, 470ml, 470ml, 395ml, and yesterday was a whopping 495ml. If it wasn't for the relentless vomiting that got us to the GJ tube to begin with, I would yank that thing out (well, deflate the balloon and gently remove it) and just put in a regular old G tube but that's not the answer either. I don't know what the answer is. Apparently nobody does. Just keep pushing the Pedialyte and let us know if anything changes. And how long can that go on without something changing, and what if it changes for the worse? The doctor is out of the office until Thursday. Fabulous. We have a weight check on Wednesday which will either confirm my suspicion that she's lost weight this week or else there's some other explanation for why the tabs on her diaper can now touch each other in the middle. So for now I guess we'll just keep dragging around the drainage bag (which I need to make a cover for because people stare at it and stare at her) and keep dumping in the pedialyte and keep running the feeding pump 19 hours a day. And maybe later in the week I won't feel so complainy.