Skip to main content

Where the blood was coming from

**Once again, I'm warning you that this post will talk about blood and stomach drainage and have a gross picture.**

I posted last week that there was blood draining from Raya's G tube again and then I posted that the bleeding had stopped. This weekend we found out where the bleeding was coming from. I was changing her diaper Saturday morning, which is when I usually check & change the gauze around her GJ tube. I glanced at it and saw that it looked a little bit pink, which is unusual. Normally, there's nothing but a little bit of drainage from her stomach (greenish & kind of looks like what you blow out of your nose when you have a cold). I carefully took the gauze off, which normally doesn't bother her, but she flinched & started fussing. When I pulled it off, I saw a rather large lump of tissue sticking out of the stoma (hole in her stomach where the GJ tube is). I never actually measured it but I'd guess that it was sticking out about 1cm from the hole and was kind of rectangle shaped. The granulation tissue she's had before was always round and grew out around the entire stoma, it didn't stick out of just one spot like this was. It was raw & bloody and from the way she was acting I could tell it was painful. There wasn't much I could do about it except put aquaphor on the gauze to keep it from sticking to it. (I was going to take a picture but she was too squirmy.) I thought (very briefly) about using a silver nitrate stick to cauterize it but it seemed painful enough already and I didn't want to aggravate it. We decided just to watch it over the weekend.
So fast forward to yesterday, I emailed the nurse yesterday morning and told her about it & asked her if we needed to do anything about it or just leave it alone. Then an hour or 2 later, I went to check it and change the gauze again and the whole thing just came off. It was not what I was expecting and it was gross but it solved the problem. :) And because I wouldn't be me if I didn't post a gross picture every so often, here it is. (This is after it had shrunk over the weekend & gotten darker in color.)

Comments

Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …