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Happy Birthday Raya!

Good morning, Birthday Girl!!


This was part of our ridiculous attempt at taking birthday pictures. Someone was slightly uncooperative. :)
 
One of the better attempts. :)


My favorite one of the day, even if she is playing with her extension tube. :)

♥Happy birthday, dear Raya♥

Hmmm...not sure what they expect me to do with this thing but at least it's fun to play with. (PS the frosting on her lip was from Mommy, not Raya)

Raya was nice enough to share her birthday cupcake with Mommy. It's a step in the right direction. :)

Me & Ray-rays :)

Daddy & Raya, the girl who won't eat food but loves to chew on electronics

Well it's been one heck of a first year. Raya's first year of life has tested us in ways that we've never been tested before. This girl has probably had more doctor/therapy appointments in one year than I've had in my whole life. I've driven about 1,500 miles this past year just driving to appointments. She's spent a total of almost a whole month in the hospital and has undergone more tests than I can count (without getting out my notebooks, Raya: volumes 1, 2 and 3, that I write everything down in) and has spent a lot of her life not really feeling good. In spite of all of the craziness she's been through in her first year, she is one of the happiest babies I know and is such a sweet girl. There is a very big personality packed into that cute little body.
She loves to "sing" (more like yell) and "dance" (wiggle) to music. She waves and says bye-bye, which she learned during her 2 weeks at the hospital from all the people that were in & out of her room all day every day & said it to her. She loves Mommy but she LOVES Daddy and she LOOOOOOVES her big kids. She hugs a lot and if she's in the right mood, I can get her to give me a kiss (which is HUGE for a kid with as much of an oral aversion as she has). She's pretty headstrong and a lot of what we do with her has to be on her terms (or else Mommy has to sit on her to get it done, like change her dressing & hook/unhook her extension tubes or change her diaper :). When she's being poked & prodded at her appointments, she's not shy about letting the whole world know what she thinks about it but she's always very quick to forgive once it's over. She doesn't forget though. :)
I had hoped we'd be closer to a diagnosis & resolving her problems by her birthday than we are but I'm so grateful for the team of people that have gotten her to where she is and helped her to be the happy & healthy little girl that she is. Believe it or not, she's our biggest 1 year old. She's beating out Cole by over a pound and Kaida by about 5 pounds. :)
We are so grateful to have Raya in our family and for everything we have learned from her. And we're hoping that year 2 is less turbulent than year 1. :)
(and how fitting that this is the 100th post on Raya's blog :)

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Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

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