Big words, eh? According to the website of Nationwide Children's Hospital (i.e. our destination) anteroduodenal manometry is:
The antrum is the lower part of the stomach and the duodenum is the first part of the small intestine, which is connected to the stomach. Antroduodenal manometry is used to study how the stomach and the first part of the small intestine are working. It can be used to measure both the strength and coordination of muscle contractions of the stomach and small intestine. To do this test, a small flexible tube (catheter) is passed through the nose, down the esophagus, through the stomach, and into the small intestine. The tube is passed after the child is sedated, but the manometry test itself is done after the child wakes up, often the next day. If the child has a gastrostomy tube, the catheter will be passed through the gastrostomy instead of through the nose.
So basically, they'll be doing testing to measure the ability (or inability:) of Raya's stomach & small intestine to move food & fluids through her digestive system efficiently. Should be interesting. I'm not sure how soon we'll be going (I still feel like I should be saying IF we go), but hopefully it will be in the next month or so. I called the hospital today and they said they'd have to get the referral from our GI doctor (which the nurse said she's already sent) and then when they get the referral their person in charge of scheduling out-of-towners will call me so we can arrange travel & accommodations. I'm also crossing my fingers that our hospital's social worker was right when she said that our insurance may pick up some or all of our plane ticket since the testing she needs is not available in our state. That would be fabulous.
Anyway, once we have an appointment scheduled, the nurse will get all the paperwork in to get authorization from the insurance company and then we'll be ready to go. I think. :)
And in other annoying news, I found out tonight when I opened the box to get out a new extension tube for Raya that when I said, "Raya doesn't have a Bard button anymore, she has a mic-key button so she'll need mic-key extension tubes. Could we get the 12 inch long ones please?" the girl at home health interpreted what I said to mean, "Could you please send me the 24 inch long extension tubes for the Bard button that Raya got removed 2 weeks ago so that we can keep using the same filthy extension tube that she's been using for 2 weeks while we wait for you to correct your mistake?" UGH!!! I'm so irritated right now! I specifically told the girl the exact product and size that we wanted, and then I even called back again later to make sure that she had ordered extension tubes and they STILL gave us the wrong thing. I'd cry right now but I need to go flush the soda pop out of the grungy old extension tube to see if it helped get any of the gunk out.