Skip to main content

Feeding Therapy: Brought to you by Costa Vida

Yesterday Raya had what was probably her best "food interaction" yet. I dumped a puddle of pureed squash on her tray (sounds appetizing, I know :) and let her go at it. Once she started to play in it, I got out one of the plastic spoons I...acquired from Costa Vida the day before. She had expressed interest in the spoon so I brought home a couple of extras. I'm sure they wouldn't mind. :) Instead of trying to feed her anything like I usually do since she's made it quite clear that I'm not welcome to put things in her mouth. I just stayed out of her way and let her be alone with her food. :)

She had the time of her life! I'm not kidding when I say that I stayed away from her. I didn't touch her or the spoon or high chair and the only time I got within 2 feet of her was to dump the other half of the jar of squash on the tray. The rest of the time I was in the kitchen pretending not to see her. It was hard to stay away though because after the struggles we've already had in the short time we've been attempting solid food with her, it was SOOOOOOO exciting to see her taking the initiative to explore the food. She smeared it all over the tray, squished it between her fingers, and rubbed the spoon in it. I even saw her stick out 1 finger, push it all the way across the tray through the puddle of squash, put the finger in her mouth, and make her "Hmmm...not sure if I like this" face. It was seriously the highlight of my day. (I'm having computer issues right now but I'll add more pictures later. You KNOW I was all over it with my camera. :)
When she finished, I was left with the aftermath:
It's no secret that I'm not Holly Housekeeper or that cleaning up baby food messes is not my favorite thing but I didn't even care about the squash mess because SHE PLAYED WITH SQUASH!!
The excitement of the day was squashed (HA HA) by her afternoon vomiting session. I saw it coming but didn't think anything would come out since she'd just been off her feeding pump for 3 hours but she somehow managed to throw up a large amount of brown liquid. It wasn't squash and we don't know exactly what it was but it might have had blood in it so we're doing more labs. It was a bummer, but the squash thing was pretty exciting. Thank you, Costa Vida for providing what is so far our most successful feeding therapy tool. I shall return soon to get more. :)

Comments

Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …